The Secret Sisterhood & Life After Miscarriage

Japanese Jizo Bodhisattva Statue

Not long ago I became a member of a very special club. It’s not a membership I asked for or wanted. The membership to this club is very exclusive – so exclusive that most of us don’t know one another and never talk about it.  I can now call myself an official  card carrying member of the Repeat Pregnancy Loss club.

We are a secret sisterhood.

I debated a long time about whether to write about this because while I share personal information about myself in this blog, I tend to shy away from the confessional-type post. Yet I feel compelled to write because I know so many women suffer in silence with this intensely private and emotional topic.

I also hope I can give those who have a loved one who has experienced miscarriage some glimpse into what women go through. Miscarriage repeat or otherwise is one of the most isolating and devastating experiences a woman can experience. 

I’ve written before about my desire to have a second child. I had D2 late in life so I knew the odds and risks of trying to get pregnant again after age 40. I decided to up my chances by going under the care of a reproductive endocrinologist. After many diagnostic tests my RE told me that I had the ovaries and egg reserve of a woman 10 years younger. I felt optimistic.

To try get pregnant more quickly we tried IUI. After three failed attempts we decided to step up our efforts. But during my ”down” (read non-medical intervention) month I discovered I got pregnant naturally. I was cautiously excited and told a few close friends and family members. Four short weeks later before my first ultra sound, I started spotting then cramping. I knew it wasn’t a good sign but I called the nurse hoping against hope she’d tell me not to worry. 

Late that night the cramps grew worse. It was the beginning of the end.

I popped a few Tylenol and by the next day my pregnancy had ended while I was at work.  While I felt sad, I didn’t feel nearly the devastation I felt the the first time I had a miscarriage the summer before giving birth to D2. My reproductive endocrinologist chalked it up to a bad egg and still gave me cautious optimism that I could get and stay pregnant.

We planned our summer vacation and decided we’d start trying again as soon as we got back. This time my doctor recommended a more aggressive drug therapy that would require me to inject myself for ten days along with oral medication.

We were all set to start the new drug regimine when I started feeling sick and noticed my chest had swollen a cup size. I took a pregnancy test and lo and behold I was pregnant again.  I didn’t feel happiness. As a matter of fact, I remember my exact emotion – fear, anxiety. I told Dr. D. but said I didn’t want to talk about this pregnancy in case it didn’t stick. 

Besides work was going gangbusters and I had D2 worry about. I didn’t want my emotional state over this pregnancy to cloud my ability to be a good mother to the wonderful child I have already.

I tried to go about my day to day as if nothing was different.  Truth is though that once you have one miscarriage and then a second (or third or fourth), it haunts you like a bad memory. All the joy of expecting is drained out of you and all that is left is fear and worry. Every twinge, cramp or perceived change in the soreness of my breasts made me think  Is today it? Is this day I am going to miscarry again?

Unlike my first and second pregnancies, I stopped reading baby books, researching baby names or even thinking about the future. I was just trying to make it to the next week (a sad side effect of  miscarriage is you start to develop strange coping mechanisms to manage your expectations when/if you become pregnant again).

You don’t want to get too attached to your growing baby because you know all too well the possible reality that awaits around the corner.

This time around my doctor did several tests to measure my HCG and progesterone levels. All checked out normal. My early ultrasound measured great and showed this pregnancy was making progress.

I dared not hope too much but I began to feel a little more safe.

At my eight week ultrasound I was hopeful but right away the screen told a story that was becoming all too familiar. What should have been a little tadpole with a flickering heartbeat in the center was a still, lifeless gray mass.  Having had one before, I decided against having a D&C and got a prescription for Cytotec, a drug that forces your body to have a miscarriage. The doctor instructed me to bring in the expelled tissue so he could examine it. Two painful, bed-ridden days later I found myself once again on the other side of a failed pregnancy.

I’ve had three miscarriages in total now, two in the last three months. I can’t lie. It’s tested my faith in large and small ways. It’s tested my faith in my body. Most days I am doing okay but other days I’m overcome by an overwhelming sadness and a sense of failure. Failure to give my son a sibling, failure to so have arrogantly believed that I could cheat time. And I worry. I worry that I am being selfish.

I know a number of women who have tried to conceive for years and still have no child. Who am, with a beautiful little boy, to think I deserve another child?

What makes me so special?

 I don’t have an answer other than I’ve always believed I would have at least two children. I ‘ve always believed that while motherhood isn’t for everyone, it is for me. When I became a mother I realized I had a reservoir of love that was deep enough for one, two or more children.

And the thing about miscarriage is this, life goes on even when you just feel like crawling into bed and shutting the world out. Meetings must be attended. Plans and decisions must be made. Groceries need to be bought. Laundry has to be folded.  Life just goes on as if nothing ever happened. The only person who knows something is different is you.

When people ask you how you are doing, you can’t blurt out I just had a miscarriage and feel like falling apart. No, you say I’m fine, thanks. Game face on.

And in any event, I was so busy juggling work and home duties there was literally no time to let the wheels come off. If I was going to have a breakdown, I was going to have schedule it and that wasn’t happening anytime soon. You keep going.

I was fortunate this time around to dodge many of the insensitive remarks that people unknowingly say after a miscarriage. Comments like At least you have a child or You should be happy you can get pregnant at all or Now you won’t have a disabled child.  Stupid, thoughtless comments.

Something else happens after miscarriage. Where once you never noticed them, you start to see babies and pregnant women everywhere. 

At the mall you see pregnant teenagers with swollen bellies in low-rider jeans and flipflops swilling Coke and eating cheetos and wonder why God chose to let some get pregnant so easily while others of us keep trying in vain.

All you can think is That should be me.

But it’s not.

How does this happen? The answer is there is no answer and you can’t be bitter (though it’s hard not to be).

I believe that our faith gets tested in many ways and for some of us, this is our test. I believe it’s mine.

You would think as a blogger that I would be more amenable to chatrooms and advice boards. I did a quick Google search and  turned up hundreds of support sites and chat rooms dedicated to infertility and pregnancy loss. Some of the stories were devastating, women who had still born babies at 25 or 30 weeks; women who had experienced multiple miscarriages for years or never conceived a child at all after years and years of trying.

I read these heartbreaking stories and feel less sorry for myself.

I never post on any of these boards. Part of it is probably denial.  I don’t want my story to be one more sad story someone else has to read.  Part of it is my naturally glass half-full mentality. I still believe in the possible and sub-conciously worry that if I focus too much on the loss it means I’m giving up. 

My faith tells me to stay hopeful.

One post on a chat board did catch my eye one day. Most of the women on this forum had experienced multiple miscarriages and one poster offered this wisdom:

I have decided that I will go ahead and love each baby for however short of a time I have them. No matter what the loss or how much it hurts at least I feel like I gave my baby my best shot and the most love possible in the short time we were together.

That one phrase was such a gift. It embodied the hope and optimism that I know I should feel with each pregnancy but somehow can’t. If I could I would thank her for changing my mind about how I will handle my next (yes, I believe there will be another) pregnancy.  You see, as hard as this miscarriage has hit me, I still believe I have a chance. I can’t say how many more times I can try before throwing in the towel for good but I know I have to at least try.

What I know for sure is that while it’s hard (very hard) to pick up the pieces after such a devastating loss, it’s possible. One piece at a time.

The other night, I was sitting on the couch and D2 climbed up on his little stool to turn on the CD player.  His favorite CD by Jack Johnson was playing.

Mama let’s dance he says to me. I tell him mommy isn’t up to it and I’ll just watch.

No!  Dance with me NOW, mama! He grabs my hand and tries to pull me to my feet. We hold hands and start dancing in a circle.

Jack Johhnson is singing.

....I want to turn the whole thing upside down
I’ll find the things they say just can’t be found
I’ll share this love I find with everyone
We’ll sing and dance to Mother Nature’s songs
I don’t want this feeling to go away…..

D2 tells me to pick him up and we dance around the living room laughing, singing, whirling around and around.  I remember the happiness that seemed to have abandoned me only days before. 

And slowly the pieces start coming back together.

10 Unwritten Rules of Maternity Leave for Career Women

What to know before going on maternity leave

Last month’s announcement of Marissa Mayer as the new CEO of Yahoo set the blogosphere on fire.  Not only did Mayer join the elite (and very rare) ranks of women CEOs, she is also the youngest CEO of a Fortune 500 company and the first pregnant woman to assume the helm of a major corporation. Bloggers weighed in immediately. Some hailed Mayer as a role model for working women. Others wondered how she would juggle a new baby while turning around a troubled company.  When asked about her maternity leave plans Mayer responded that she would take a few weeks off to have the baby and work throughout that time. In other words, she planned to pause long enough to give birth before resuming her duties as CEO. 

While I was thrilled by Mayer’s appointment, as a working mom I was also initially somewhat disappointed that she planned to take such a short maternity leave. My first thought? What message does this send to other women working for Yahoo who become pregnant? Will women ever be able to advance at the executive levels without sacrificing their roles as mothers? As a first-time mother, does Mayer have any idea what she is in for? Let’s see if  she can have it all.  

You could say I had a Sanctimommy moment.

Then I remembered my own maternity leave, now almost three years ago, and my mixed feelings of excitement about welcoming my new baby and anxiety about all of the responsibilities I’d be leaving at work during my three-month absence. So much was going on at work and I wondered how I could possibly keep it all going. It was hard for me to conceive being gone for three days let alone three months.

I also remembered hard-working women like my sister-in-law, a corrections officer, who had to bottle train my niece almost immediately so she could go back to work six weeks after giving birth. I remember that her story is more the norm than we’d like to admit.

When I became pregnant I scoured websites looking for advice on maternity leave.

What I encountered were lots of explanations about the FamilyMedical Leave Act but no real advice about how to design a maternity leave that allowed me to balance new motherhood and manage my career.

I soon realized there were two types of maternity leave policies: those that we women were legally entitled to through FMLA and the unofficial policies laid out by the corporate cultures we work in.

I am fortunate to work for a very family-friendly organization and have a supportive boss. But I  know many women who work in organizations where maternity leave means being consigned to the Mommy Track. It’s one of the reasons I left the PR agency world six years ago. During my years working for two large global PR firms, I noticed that I almost never saw a pregnant managing director or senior vice-president and that most of the senior executives were either men or childless women.

That was one of many clues I was in the wrong work environment for me.

In the last few years, I’ve talked to and coached many pregnant career women. Based on their and my own experience, I’ve distilled these unwritten rules of  maternity leave:

1. Don’t announce your pregnancy too early.
For practical reasons it’s good to wait until at least the end of your first trimester to announce your pregnancy when chances of miscarriage go down, but there is another good reason to wait. In some competitive office environments, share your pregnancy too early and you might find yourself left out of plum assignments; colleagues mentally begin to write you off for certain projects because they don’t think you’ll be around to see them through. So while you may be bursting to share your good news, hold out for as long as you can.

2. Understand your legal rights.
It’s hard to believe but there are still stories of women being fired while out on maternity leave. Do your own research to understand FMLA before meeting with your HR department. In most states you are entitled to eight weeks of paid leave (Note: If you work for a small business with fewer than 50 employees, your employer is not legally required to offer paid time off for maternity leave) If you decide to do a full three months, often you must use accrued vacation time along with short-term disability. If you don’t have enough vacation time or coverage through short-term disability, you may find your salary reduced for the time you are out. In short, know your rights.

3. Have a plan.
When I got pregnant, I was clueless about creating a written maternity plan. It wasn’t until a wonderful colleague pulled me aside and asked me about my plan, did I think about it seriously. What kind of plan you ask? Who will stand in for you during your absence? What decisions can and can’t be made without you? If  you are out during your annual planning period, will you participate and to what extent? What is the status and budget of your current projects? What key milestones are coming up?  You should clearly outline these and other issues in your plan so that colleagues can easily navigate during your absence.

4. Communicate your intentions to return to work.
Your boss and your colleagues will wonder if you plan to return to work. Now anyone who knows me, knows I’d make a lousy SAHM but that didn’t stop people from wondering if I was planning on returning to work. There was enough buzz about this that I made it very clear I was coming back and to call off the vultures looking to pillage my office in my absence. The lesson? Don’t assume people know your intentions. If you are returning to work, let people know.

5. Don’t check out. Be passively present.
The reality is that if you have a job with significant responsibility, it’s very hard to go completely dark.  My advice? Selectively check in. Check your email a couple of times a week and let people know they can call you for critical issues.  Most people are not going to abuse this privlege.When I was out on maternity leave I had a standing weekly one-hour catch up meeting with the director who was filling in for me. He did a fabulous job and I felt connected without feeling like I was working.  I also made myself available by phone to my staff to answer questions when the need arose. This happened very rarely and when it did, I was glad they called because they were important issues.
 
6. Get back into fighting shape.
No, I’m not suggesting you go on some ridiculous crash diet to get your pre-baby body back. Leave that to the celebrities. The reality is between sleep-deprivation and breast-feeding,  most new moms barely have enough energy to get out of pajamas by noon let alone start seriously working out. I did find however that starting to walk after I was cleared by my doctor to exercise did wonders for my mental clarity and sense of self. I gained 45 pounds when I was pregnant and the fact that none of my work clothes fit two months after giving birth was  downright depressing. Joining Weight Watchers (which has a great plan for nursing mothers) and starting a mild exercise routine helped me slowly get my old body back and my self esteem.
 
7. Figure out your re-entry plan.
What’s the worst part of maternity leave? When it ends and you have to leave your precious baby in the care of another caregiver. When I went back to work and left D2 with his new nanny, it tore my heart to shreds. I cried every day for the first month back at work. Luckily, the pain of re-entry was made slightly more bearable because of the flexible schedule I arranged with my boss. I worked from home one day a week (on the advice of my lactation consultant I chose Wednesday)which also allowed me to keep my milk supply going by giving me a nursing day during the weekday.  Rememer, how you decide to return to work is as important as how you will manage your absence.
 
8. Develop your support network.
Help is a new mom’s best friend. I would have never survived those early months of new motherhood without my mother-in-law who moved in with us for six months. She taught me everything I know about caring for an infant and I remain forever grateful to her. No relatives nearby? Think about hiring a housekeeper and using a meal service like Dream Dinners.  Accept any and all help because you will need it. Let friends come over and watch the baby even if it’s just to let you sleep for a few hours or go and get your hair done.

 

9. Expect the unexpected.
Never in a million years did I expect to have a C-section but after more than 30 hours of labor, that is exactly what happened when my labor failed to progress. My recovery was long and I had far less mobility in the early weeks after giving birth that I would have ever guessed. I gave birth in mid-November and had planned to attend my company’s December board meeting for a couple of days.  Recovery from the surgery was brutal and the only thing I could do for a month was lie on a couch, nurse and watch back episodes of Mad Men.  The moral here? Expect the unexpected and be ready to roll with it.

10. Figure out your childcare before the baby arrives.
One of the biggest mistakes I made was not figuring out my childcare before D2 was born. It wasn’t an intentional oversight. With my hectic work schedule and finishing up my MBA, I barely had time to breathe let alone figure out who would watch my son when I returned to work. Big mistake. I ended up spending the last part of my maternity leave interviewing nannies. I was a frantic mess and in retrospect probably scared off a few good  candidates with my new mom frazzle.  If I had to do it over again, I would have had my childcare figured out during my last trimester. If you are trying to get  your sprout into a popular daycare, you may find that you’ll need to get on a waiting list even before your baby is born. So don’t put it off. You’ll thank me later.

Despite the C-section and the normal new-parent curveballs,  I ended up having a wonderful maternity leave. My team did an amazing job while I was away which allowed me to focus primarily on my baby even though I lurked on email a bit and took the odd call or planning meeting. 

It’s a shame  in the US we don’t have better policies that allow new mothers (and dads) to spend more time with their newborns. I feel jealous of my European collegues who often get up to a year or more of paid family leave. We are a long way culturally and policy-wise from such a change. On the positive side, I see more employers recognizing that a generous family leave policy is an excellent tool for retaining top employees and cultivating more women in senior management positions. It’s a good sign.

What I know now for sure is that  maternity leave is a sacred time. It’s critical bonding time with your baby that you can’t get back.  With some advance planning, good communication with your colleagues and a willingness to be flexible, I think it’s possible to take this crucial time while still managing the demands of your job. So don’t cheat yourself or your baby. Get creative and make it happen.

Now it’s your turn. What do you know now about maternity leave that you wish you had learned before you gave birth? What advice do you have for new moms? If you are expecting, what worries you about your maternity leave? I want to hear from you. Let’s talk.